Huge percentage of later stage Dementia sufferers not receiving specialist end of life care
Nearly 99 per cent of all people with advanced dementia are not receiving adequate specialist care services, according to a recent research report.
The study conducted by Marie Curie Palliative Care Research Department (MCPCRD), at University College London (UCL), shows those with advanced dementia are not receiving services such as proper palliative care and psychiatric services. As a result, GPs and emergency services are being burdened with the responsibility of end-of-life care.
According to Dr Liz Sampson, reader in old age psychiatry at UCL’s MCPCRD, the current system is ‘not fit for purpose’.
She said: “There are challenges that we face in terms of providing high-quality end of life care to people with dementia, including an uncertain prognosis, the difficulty in knowing when people are entering the terminal phase of their condition and when specialist services should be involved.”
Complaints, Suggestions and Compliments Procedure
A complaint can be made: by telephone; in writing; by email; or in person. All responses will be made/followed up in writing (preferably email).
Complaints can be made to:
Elect Healthcare Solutions Ltd
01279 400 480
Complainants must receive an acknowledgment within 24 hours. In this acknowledgment let them know who will be investigating the complaint.
Set a time limit for the acceptance and investigation of complaints. 12 months is appropriate. Once established you can state that:
A complaint must be made no more than 12 months after:
- The date the event occurred, or if later,
- The date the event came to the notice of the complainant
- The time limit will not apply if Elect Healthcare Solutions Ltd is satisfied that:
- The complainant can give a good reason for not making the complaint within that time limit;
- and odespite the delay, it is still possible to investigate the complaint effectively and fairly.
State also how you will deal with anonymous complaints.
All complaints will be dealt with by a senior person within the organisation.
Complainants will receive (as far as reasonably practical):
- Assistance to help them understand the complaints procedure;
- and oadvice on where they may obtain such assistance.
The notice board at your registered address (or other prominent public place) should include a display of advocacy services with contact details. It needs to be regularly reviewed, to ensure that advocacy services contact details are up to date.
Elect Healthcare Solutions Ltd will only accept complaints from a third party under certain conditions:
- Where you know that the has consented, either verbally or in writing; or:
- Where then cannot complain unaided and cannot give consent because they lack capacity within the meaning of the Mental Capacity Act 2005; and
- The representative is acting in the ’s best interests – for example, where the matter complained about, if true, would be detrimental to the .
The procedure must be available, upon request, in other languages and formats. You only need to prepare a special format on request to keep costs low.
You should state your expected turnaround/resolution time. This should be 28 days, but be realistic advising longer where necessary.
All complaint investigations should be completed within 6 months at the latest, unless a different time period has been agreed. This should only be done when there is a good reason for it.
Complainants have the right to refer their complaint to the Local Government Ombudsman if they are unhappy with the outcome of the investigation. The complainant also has the right to alert the Care Quality Commission.
“Once your complaint has been fully dealt with by Elect Healthcare Solutions Ltd, if you are not satisfied with the outcome you can complain to the Local Government Ombudsman (LGO). The LGO provides a free, independent service. You can contact the LGO Advice Team for information and advice, or to register your complaint:
T: 0300 061 0614
The LGO will not usually investigate a complaint until the provider has had an opportunity to respond and resolve matters.
Our service is registered with and regulated by the Care Quality Commission. The CQC cannot get involved in individual complaints about providers, but is happy to receive information about our services at any time. You can contact the CQC at:
Care Quality Commission (CQC)
Newcastle upon Tyne NE1 4PA
Tel: 03000 616161
Fax: 03000 616171
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